Our little girl's journey as she finds HOPE in the midst of Chiari Malformation, an incurable brain condition.
Hi Jamie,My name is Pete Dal Bello and I am the founder and president of the International Chiari Association (ICA). I also have Chiari. The ICA is a nonprofit organization dedicated to helping those with Chiari and the people that care about them. I know that Ashlyn will be having surgery next week. If you have any questions or concerns, feel free to contact me. The ICA is always here for you and your family. My contact info can be found at the bottom of this post.Today, we posted your blog at both the ICA Newsroom (on our web site) and on our Facebook page. It is people like Ashlyn, who battle Chiari on a daily basis, that inspires both myself and my team (21 people - board members and advisors combined).The ICA just added a Links section to our web site (www.ChiariAssociation.org). I hope that we can exchange links in the future.We are the only Chiari nonprofit to provide news and information from Monday through Friday. We have already brought many exciting new things to the Chiari World. Among them are the following: a web site that is updated from Monday through Friday; a web site that translates into other languages; mascots; the International Chiari Association Network (ICAN)(becoming the first Chiari nonprofit to develop its own network on YouTube); an updated Doctor Directory; a list of Medical Centers. We look forward to unveiling many more new things to help Chiarians, both in the United States and abroad. I invite you to visit our web site (www.ChiariAssociation.org), "Like" us on Facebook (www.facebook.com/chiariassociation) and subscribe to the International Chiari Association Network (ICAN)(www.youtube.com/user/ChiariAssn?feature=mhsn#p/p). We have big plans for ICAN, which features many Chiari-related videos. Take care and thanks for your time. Both you and your family are in my prayers.All the best, Pete Dal Bello Founder/President International Chiari Association (ICA) **********************************************Pete Dal Bello Founder/President International Chiari Association (ICA)27 W. Anapamu St., #340 Santa Barbara, CA 93101 USA ICA Web Sitewww.ChiariAssociation.orgICA on Facebook ("Like" Us)www.facebook.com/chiariassociation International Chiari Association Network (ICAN) (Subscribe)www.youtube.com/user/ChiariAssn?feature=mhsn#p/pPhone: (805) 570-0-HUGFax: (815) 301-6541 E-mail: pete@ChiariAssociation.orgLinkedIn: http://www.linkedin.com/pub/pete-dal-bello/3b/aa3/a9a
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