April 29, 2012
April 25, 2012
The doctor got some information on Ashlyn's background and diagnoses, and then did a full neurological exam. The doctor also explained Ashlyn's original MRI.
The neurologist said that Ashlyn seems to be doing wonderfully!! She passed the neurological exam and the doctor doesn't need to see her back unless we have future concerns!!
Wahoo, great news!!
April 21, 2012
She hasn't had any Tylenol for three days now, she is eating well, and is sleeping better at night.
Ashlyn goes back to physical therapy this week and also has an appointment with the pediatric neurologist.
April 19, 2012
April 18, 2012
April 17, 2012
April 16, 2012
April 15, 2012
April 14, 2012
April 13, 2012
April 12, 2012
April 11, 2012
duraplasty - surgical procedure where a patch is sewn into the dura
graft - material, or tissue, surgically implanted into a body part to replace or repair a defect
This part of surgery was necessary to make more space for Ashlyn's brain. There are different ways to create a patch and so I asked Dr. Fuchs what he used. He used a piece of the outer covering of a human heart!! WHAT!!?? That is amazing!! Sorry if this sounds pretty graphic. So, we are extra grateful for the donor for the new patch inside of Ashlyn's head! I'm not sure who to thank, but Thank You!
There are the main detail from our post op report with the neurosurgeon. We are so glad that it went well. Thank you Lord!
April 10, 2012
April 9, 2012
April 8, 2012
April 7, 2012
April 4, 2012
April 3, 2012
April 2, 2012
Monday, Ashlyn will go in for a few more tests at Duke. The first is another MRI to see if she has a syrinx. The first MRI wasn't low enough to see if this exists or not so they have to repeat the MRI. Here is a brief description:
Syringomyelia (sih-ring-go-my-E-lee-uh) is the development of a fluid-filled cyst (syrinx) within your spinal cord. Over time, the cyst may enlarge, damaging your spinal cord and causing pain, weakness and stiffness, among other symptoms.
Syringomyelia has several possible causes, though the majority of syringomyelia cases are associated with Chiari malformation, a condition in which brain tissue protrudes into your spinal canal. Other causes of syringomyelia include spinal cord tumors, spinal cord injuries and damage caused by inflammation around your spinal cord.
The pediatric neurosurgeon also wants to do a test to see how the spinal fluid is flowing. The first MRI showed some blockage with the fluid, but this test will be more specific.
Depending on the results of the MRI and the flow of the spinal fluid, the surgeon might have to adapt the surgery a little. We will know more next Tuesday when we get the results and meet with the doctor.