April 11, 2013

Time to Celebrate!

ONE Year Since Brain Surgery!

Wow.  Just wow.

I've been reminiscing a lot this week as I remembered where and what we were doing one year ago, how I was feeling, what Ashlyn was going through, thinking about doctors, nurses, waiting rooms, PICU rooms, hospital food, sleeping on floors, tears, prayers, support, and HOPE!

And then I also have been thinking about how much progress Ashlyn has made over the past year: recovered from decompression surgery, MRI's, doctor appointments, trips to Duke, finished physical therapy, started and finished occupational therapy, and not to mention all of her physical development!

And then I think about what the future holds for Ashlyn: excited that she can have a "normal" childhood (HOPEfully free from any Chiari pain or symptoms) and HOPEful that her surgery from one year ago will be the only decompression surgery she will need.

I'm tearful thinking of the past, present, and future.  Ashlyn is a picture of inspiration, determination, and HOPE.  She is a fighter.  She is a Chiari warrior.  She will not let this incurable brain disorder slow her down!  We are blessed with an amazing little girl and thankful to the Lord for all he has given her and us!

One Year Ago (Brain Surgery Day)






Post Op Report


(For post op reports from one year ago, including day by day recovery updates, please see the blog archive).