For the past few weeks, Ashlyn's fussiness returned, just like before her decompression surgery. Sometimes I feel like we have a colicky baby.
Usually, Ashlyn cries the most when she wakes up in the morning and when she wakes up from her nap. She will scream and cry for 1-2 hours and nothing will help. Sometimes she will cry from the time she wakes up from her nap until the time she goes to bed at night. She doesn't want to eat, drink, play, sing, etc. I will hold her and cuddle her but she still cries so I will set her down and she still cries. It is frustrating, for all of us.
I'm not sure if this is a side effect of Chiari or her just not being a morning person.
I'm glad Ashlyn has an appointment with the neurosurgeon in a few days.